Special Needs Adoption FAQs

Since 1995, Spence-Chapin has found adoptive families for 520+ children with special needs. Spence-Chapin is currently accepting applications from families who are open to adopting a child with significant medical needs. To be considered as a prospective adoptive family please complete our free pre-application send us a copy of your current home study (completed within the past 12 months), conducted by a licensed adoption agency. In order to reduce barriers to special needs adoption there are no professional service fees for special needs adoptions. Read more: www.spence-chapin.org/asap

Emailasap@spence-chapin.org
Fax: (888)-742-6126
Mail: Special Needs at Spence-Chapin, 410 East 92nd Street, 3rd Floor, New York, N.Y. 10128

Frequently Asked Questions:

I would like to be considered as an adoptive parent. What’s my first step?
Please share a copy of your current home study and complete the Spence-Chapin online pre-application. Please email your home study and/or family profile to asap@spence-chapin.org.

Unfortunately, families without a current home study are unable to be considered.

Since the children are ready to be adopted immediately we need families that are ready to adopt.

Complete the free online pre-application here: www.spence-chapin.org/asap

I’ve emailed my home study and submitted the pre-application. What’s next?
All families who have completed the online pre-application and emailed their current home study are considered active prospective adoptive families. We will contact you if your family is a potential match for a current or future waiting child. We will provide status updates regarding the adoption process on our website within the child’s profile. All available information about a child is on our website. Spence-Chapin will keep a home study on file for as long as it is current and keep the family in mind for any future situations.

When will I hear from the social workers?
We will provide status updates on our website within the child’s profile. Due to the volume of emails, we are unable to respond to every email about a waiting child. Please stay in touch with Spence-Chapin through our newsletters, facebook, and twitter. Keep up with waiting babies through our website.

What kind of home study do I need?
You will need a current home study written by a social worker at an accredited agency in your home state. We ask for an agency home study because it’s important for families to be connected to ongoing support and services. You can submit any home study you currently have and if you are chosen we may have additional questions and ask for it to be updated depending on the child’s situation.

The children needing adoptive families are born with a wide variety of medical needs and we are looking for adoptive families who are open to severe medical conditions. Please indicate in your home study and the pre-application the types of medical conditions your family is open to and share the resources which will allow a child thrive in your family.

I need more information- what else can you share?
Everything that we are able to share at this time is available on our website. If information changes or more becomes available, we will update the website. If a diagnosis sounds unknown or you are unsure about prognosis we encourage you to speak with a pediatrician. It is not possible to visit with the child before being identified as the adoptive family.

How much will this cost?
In order to reduce barriers to special needs adoption there are no professional service fees for this adoption program. There is no cost to submit the online pre-application and be matched with a child. Costs to consider include home study, travel to NYC for the placement, post-placement reports, and adoption finalization. If a two-parent household then both parents are required to travel to the Spence-Chapin offices for the placement and should expect to stay in NYC metro area for about 1 week.

Who picks the adoptive family? Am I eligible to adopt?
Eligibility is very flexible; we see all types of families: people who are not yet parents as well as parents of large families, families who live in urban, suburban, and rural areas throughout the U.S., families of different races and ethnicities, and parents of different ages. Families living in any states are eligible to apply to adopt.

Overall, we are looking for loving families who are prepared and excited to adopt a child with special medical needs! Whenever possible the birth family chooses the adoptive family. Because the children have special medical needs, it is important to know how and why a prospective adoptive family feels prepared to parent a child with significant medical needs. Spence-Chapin supports open adoption and is seeking adoptive parents who are open to ongoing contact with their child’s birth parents, often in the form of phone calls, video chat, letters, emails, visits, and texts.

Where do the children come from?
All of the children are born in New York, New Jersey, or Connecticut Spence-Chapin offers free, unbiased options counseling to women and their partners in the NYC metro area. Sometimes birth parents know prenatally that a baby will have a special need, other times we are contacted after the birth of the baby.

You can watch two videos on our special needs adoption webpage from birth parents of children with special needs. You’ll hear Melissa talk about how when her daughter was diagnosed with Down syndrome Melissa and her husband did not feel ready to provide her with the parenting she needed. They made an open adoption plan. You’ll also hear Scott talk about the unknowns of when his third child was diagnosed with Down syndrome prenatally and how he and his partner explored adoption and ultimately chose to parent their daughter. The same diagnoses with different outcomes and our social workers are here to support all birth parents in exploring their options. www.spence-chapin.org/asap

Not all waiting children are photo listed on our website. It is the birth parent’s choice if their child’s photo and/or background information is shared online and each parent makes a choice that feels comfortable for them. Sometimes we already have adoptive families who have pre-registered with SC who are able to be considered. Other times we are in need of a more options for the birth family and looking for more prospective adoptive families.

If I’m chosen as the adoptive parent what are my next steps?
The social worker will be in touch about gathering a current family profile from your family and to discuss the logistics of meeting the birth family in a match meeting, either in-person or through video chat. You’ll receive the any additional information that has become available and review medical history with your pediatrician. After the match meeting you’ll speak to your social worker about if you’re ready to move forward with the adoption and the same for the birth family. Our team will plan placement of the child to your family.

When will a child be placed with me?
I wish this was simpler to answer! There are so many factors that go into an adoption placement that this is very difficult to predict and there is no guarantee that a child will be placed with your family through this adoption program. We encourage you to network with other agencies or advocacy groups once your home study is completed. Whenever possible biological parents chose the adoptive family. Some biological families have requests about the adoptive family, such as 1 or 2 parent household, religious, or racial preferences. This means that not all families who are open to adopting a child may be profiled with all biological parents. If a preference is known, we will often write it in the child’s online profile.

Who are the children? What are special needs?
The children are infants and young children in the NYC metro area who have been diagnosed with a medical condition or are at significant risk for developing a severe medical condition. The children are born in New York, New Jersey, or Connecticut and are from diverse racial and ethnic backgrounds. The infants and children in need of adoption have a variety of special needs, from significant developmental issues to serious medical and congenital conditions.

The conditions usually require therapeutic and/or medical interventions during the child’s entire life. These non-correctable conditions can include:

  • Genetic Disorders
  • Brain Anomali
  • Neurological Disorders
  • Rare Syndromes
  • Cardiac and Pulmonary Disorders
  • Shortened Life Span
  • Excessive Drug and/or Alcohol Exposure
  • Significant Risk of Psychiatric Disorders

Many children are eligible for Early Intervention Services, Social Security Disability, Adoption Subsidy, and Medicaid.

When Doctors believe that a child’s prenatal environment will most likely lead to developmental delays or other medical needs then that child will be placed with adoptive parents ready for special needs. This includes significant prenatal drug or alcohol use, or extreme prematurity.

Where will I finalize the adoption?
It is case-by-case. Some cases need to finalize in NY or NJ, others can be finalized in your home state. If you are called about a child, it would be an important question to ask about a specific situation.

Where is the child living?
Infants may be living with our volunteer interim care families, receiving treatment in the NICU, or pediatric hospital, or living with biological family. When writing about a child’ situation on our website we try to indicate where the child is currently living.

7 Questions to Ask Before Adopting a Child with HIV/AIDS

There are children in both the US and abroad with HIV or AIDs waiting to be adopted. The miracle of medications has made HIV a mostly manageable chronic disease, but not every family is cut out to raise a child with HIV. Are you? Answer these questions to find out.

  1. Are you willing and do you have the time to become informed about the realities of raising a child with HIV/AIDS? Education is a must and it takes time.
  2. Do you have medical resources near you that specialize in the treatment of HIV/AIDS?
  3. Are you organized and disciplined enough to make sure that your child takes her medication on time every day? It’s not a hard medication routine, but it does require consistency.
  4. Have you considered the time demands of parenting a child with a chronic illness? While HIV/AIDS is often well controlled with medication, it still requires regular visits to a doctor.
  5. Have you considered the negative stigma that continues to surround children with this virus? Are you willing to advocate for your child?
  6. Who will you tell about your child’s HIV status? By law, families are not required to disclose the HIV status of a child to schools or daycare centers; however, you may choose to tell people for any number of reasons. You need to spend the time before you adopt considering the advantages and disadvantages of disclosure.
  7. Are you able to push back your fear and open your heart to one of the thousands of kids with HIV currently waiting in the US and abroad for adoption?

This content was originally published by Creating a Family, the national adoption & infertility education nonprofit. https://creatingafamily.org/adoption-category/7-questions-to-ask-before-adopting-a-child-with-hivaids/

Series on Special-Needs: HIV+

As with any special need, it is important for parents considering adopting a child with an HIV+ diagnosis to do the necessary research about the disease, its symptoms, the myths and truths, and what medical care their child would require.  Spence-Chapin has information for prospective families considering adopting a child with HIV.

HIV-and-kidsHuman Immunodeficiency Virus (HIV) is an auto-immune disease that exists throughout the global population. This disease can be passed directly from mother to child and there is a high number of children living with HIV – ~3.3 million children worldwide.  With modern medicine children with HIV who receive medical attention can go on to live long, healthy lives.

HIV and Acquired Immunodeficiency Syndrome (AIDS) are two viruses that are associated with many stigmas.  These include the idea that an infected individual cannot live a happy and healthy life.  At Spence-Chapin, we know firsthand that it is possible for adopted children to not only live with HIV but thrive with their wonderful adoptive families.  Read about one of our families who chose to adopt a child with a positive HIV diagnosis through our South Africa Program

Children with HIV deserve loving homes with parents who will care for them no matter what they are living with.  We are committed to finding homes for the most vulnerable children and support adoptive parents who share in this commitment.

 

Informational Links:

Adoption & HIV

Adopting a child with HIV: The story of one of our families

Creating a Family Radio Show:  “Adopting and raising a child with HIV” 

Spence-Chapin Modern Family Center

 

Series on Special-Needs: Hepatitis B

Among the children with special needs waiting to be adopted, children with Hepatitis B face many challenges.  Hepatitis B is a blood-borne infection that can be spread to a child from his or her birthmother.

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This disease can cause damage to the liver and can affect the body’s immune response.  Although a serious infection, Hepatitis B is “vaccine-preventable” and treatable. Currently in the U.S. the two approved treatment options for children with chronic hepatitis B are: (1) Intron A (interferon alpha) and (2) Epivir-HBV (lamivudine).

Understandably, prospective adoptive parents often have reservations about adopting a child who is infected with Hepatitis B and may have questions about how this infection will affect their lives as well as the life of their child.   Symptoms for chronic Hepatitis B which include jaundice, fever, liver enlargement, and abdominal pain but the good news with this infection is that due to developing immune systems, many babies and children do not ever experience these symptoms.

The first step an adoptive parent can take is to make sure that everyone in the family is already vaccinated for the virus and screened.  An adopted child who is infected should be regularly seen by a doctor and treatment options should be thoroughly explained.  Hepatitis B is common in areas of certain countries but it is treatable. Adoptive parents should always contact a family physician with any concerns or medical questions—follow-up is key.

The Modern Family Center at Spence-Chapin also provides informational and support services for parents who adopt children with Hepatitis B.  We are honored to work with parents who adoptchildren with special needs and recognize that, although it is a big undertaking, these children are receiving the love and care they deserve.

 

Informational links:

Hepatitis B 

Treatment Options

What You Need to Know about Hepatitis B

Spence-Chapin Modern Family Center

 

Series on Special-Needs: Down Syndrome

Spence-Chapin works to find families for children from a variety of diverse and vulnerable populations.  These populations include children with special needs.

Portrait of beautiful young girlDown syndrome is a genetic disorder in which a child has 3 copies of chromosome 21, instead of 2.[1] Worldwide, it is estimated that somewhere between 3,000 and 5,000 babies are born each year with Down syndrome. There are roughly 250,000 families currently in the U.S. affected by Down syndrome.[2] Children with Down syndrome face potential physical and intellectual delays and may be more susceptible to certain medical conditions including heart defects and difficulty in hearing.[3]

Facts and figures (and stigmas) aside, children born with Down syndrome are lovable individuals who can make wonderful additions to an adoptive family! Medical and psychological care for these children is obviously paramount because this is a disorder that is accompanied by developmental challenges. What is equally important is that these children receive love and compassion from their families.  Research suggests having a child with Down syndrome in the family can actually have positive effects on a family unit.  Another study revealed that divorce rates in families of a child with Down syndrome are actually lower, comparatively.

For those parents who can open their hearts and homes to children with Down syndrome (or another special need), we  offer support and resources Our Modern Family Center provides programs and services for all adoptive families to help navigate this lifetime process.

 

 


Father Of Ten Adopted Children With Special Needs: ‘We’ve Had An Unbelievable Amount Of Support’

We love this story from Huffington Post…..

 

 

 


In honor of Adoption Awareness Month this November, Jeremy Green joined HuffPost Live to share his story of adopting and raising six special-needs children.

Green, the father of three biological children, considered adoption after he and his wife discovered they could no longer have more kids. “We found out we could not have any more children biologically and wanted to add to our family,” he explained to host Nancy Redd. “And as we started down that road, we at first were thinking ‘healthy infant.’ But as we went through the process, we started to look at the ‘waiting children’ list. And these are kids that have special needs, that don’t match up with what anybody has checked off on their adoption paperwork saying, ‘yes, we’d accept a child with such-and-such special needs.'”

The first child they adopted, Ellie, was blind. When he first saw Ellie’s profile, Green admitted he was nervous. “I was quite overwhelmed. I said, ‘you know, blind — that’s a significant special need. We don’t know anything about that.’ But then I came to realize that nobody knows anything about raising a special-needs child, and special-needs kids are born to families all the time. And you just deal with it and you figure it out.”

“And we got Ellie, and from then on, the special need has never even really been part of the question. They’re just people.”

Green added that his children often help each other with their different needs. “Our daughter Lexi is blind, and our daughter Sophie was born without arms. Both of them were adopted at the same time, December of 2010, and they are just two peas in a pod. They go everywhere together. Lexi, again being blind, will take hold of the empty sleeve of Sophie’s shirt, and Sophie will lead her around the house, and if they need something, Lexi can reach it. So they really work together, they play together, they play make-believe together, they’re just the sweetest little couple of kids.”

As the Greens prepare to add a 10th child to their fold, the family has also received an outpouring of support from their community. “When we announced that in the spring of last year–2012, our community actually rallied around us and decided they would like to help us get into a bigger home,” he said.

“And they raised over $200,000 toward the construction of a larger home that we just moved into about two months ago. And it has made just an amazing difference for our family. So we’ve had an unbelievable amount of support.”

December 3rd is Giving Tuesday, a global initiative to inspire people to give back to the charities and causes that they celebrate.  At Spence-Chapin, we work to connect children with permanent homes, deep parental love, and a lifelong sense of security.  We can help more children find homes by alleviating all financial barriers to families looking to adopt – but we cannot do this without you!  Please participate in Giving Tuesday by making a contribution to the Spence-Chapin Annual Fund