Series on Special-Needs: Hepatitis B

Among the children with special needs waiting to be adopted, children with Hepatitis B face many challenges.  Hepatitis B is a blood-borne infection that can be spread to a child from his or her birthmother.

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This disease can cause damage to the liver and can affect the body’s immune response.  Although a serious infection, Hepatitis B is “vaccine-preventable” and treatable. Currently in the U.S. the two approved treatment options for children with chronic hepatitis B are: (1) Intron A (interferon alpha) and (2) Epivir-HBV (lamivudine).

Understandably, prospective adoptive parents often have reservations about adopting a child who is infected with Hepatitis B and may have questions about how this infection will affect their lives as well as the life of their child.   Symptoms for chronic Hepatitis B which include jaundice, fever, liver enlargement, and abdominal pain but the good news with this infection is that due to developing immune systems, many babies and children do not ever experience these symptoms.

The first step an adoptive parent can take is to make sure that everyone in the family is already vaccinated for the virus and screened.  An adopted child who is infected should be regularly seen by a doctor and treatment options should be thoroughly explained.  Hepatitis B is common in areas of certain countries but it is treatable. Adoptive parents should always contact a family physician with any concerns or medical questions—follow-up is key.

The Modern Family Center at Spence-Chapin also provides informational and support services for parents who adopt children with Hepatitis B.  We are honored to work with parents who adoptchildren with special needs and recognize that, although it is a big undertaking, these children are receiving the love and care they deserve.

 

Informational links:

Hepatitis B 

Treatment Options

What You Need to Know about Hepatitis B

Spence-Chapin Modern Family Center

 

Series on Special-Needs: Down Syndrome

Spence-Chapin works to find families for children from a variety of diverse and vulnerable populations.  These populations include children with special needs.

Portrait of beautiful young girlDown syndrome is a genetic disorder in which a child has 3 copies of chromosome 21, instead of 2.[1] Worldwide, it is estimated that somewhere between 3,000 and 5,000 babies are born each year with Down syndrome. There are roughly 250,000 families currently in the U.S. affected by Down syndrome.[2] Children with Down syndrome face potential physical and intellectual delays and may be more susceptible to certain medical conditions including heart defects and difficulty in hearing.[3]

Facts and figures (and stigmas) aside, children born with Down syndrome are lovable individuals who can make wonderful additions to an adoptive family! Medical and psychological care for these children is obviously paramount because this is a disorder that is accompanied by developmental challenges. What is equally important is that these children receive love and compassion from their families.  Research suggests having a child with Down syndrome in the family can actually have positive effects on a family unit.  Another study revealed that divorce rates in families of a child with Down syndrome are actually lower, comparatively.

For those parents who can open their hearts and homes to children with Down syndrome (or another special need), we  offer support and resources Our Modern Family Center provides programs and services for all adoptive families to help navigate this lifetime process.

 

 


Father Of Ten Adopted Children With Special Needs: ‘We’ve Had An Unbelievable Amount Of Support’

We love this story from Huffington Post…..

 

 

 


In honor of Adoption Awareness Month this November, Jeremy Green joined HuffPost Live to share his story of adopting and raising six special-needs children.

Green, the father of three biological children, considered adoption after he and his wife discovered they could no longer have more kids. “We found out we could not have any more children biologically and wanted to add to our family,” he explained to host Nancy Redd. “And as we started down that road, we at first were thinking ‘healthy infant.’ But as we went through the process, we started to look at the ‘waiting children’ list. And these are kids that have special needs, that don’t match up with what anybody has checked off on their adoption paperwork saying, ‘yes, we’d accept a child with such-and-such special needs.'”

The first child they adopted, Ellie, was blind. When he first saw Ellie’s profile, Green admitted he was nervous. “I was quite overwhelmed. I said, ‘you know, blind — that’s a significant special need. We don’t know anything about that.’ But then I came to realize that nobody knows anything about raising a special-needs child, and special-needs kids are born to families all the time. And you just deal with it and you figure it out.”

“And we got Ellie, and from then on, the special need has never even really been part of the question. They’re just people.”

Green added that his children often help each other with their different needs. “Our daughter Lexi is blind, and our daughter Sophie was born without arms. Both of them were adopted at the same time, December of 2010, and they are just two peas in a pod. They go everywhere together. Lexi, again being blind, will take hold of the empty sleeve of Sophie’s shirt, and Sophie will lead her around the house, and if they need something, Lexi can reach it. So they really work together, they play together, they play make-believe together, they’re just the sweetest little couple of kids.”

As the Greens prepare to add a 10th child to their fold, the family has also received an outpouring of support from their community. “When we announced that in the spring of last year–2012, our community actually rallied around us and decided they would like to help us get into a bigger home,” he said.

“And they raised over $200,000 toward the construction of a larger home that we just moved into about two months ago. And it has made just an amazing difference for our family. So we’ve had an unbelievable amount of support.”

December 3rd is Giving Tuesday, a global initiative to inspire people to give back to the charities and causes that they celebrate.  At Spence-Chapin, we work to connect children with permanent homes, deep parental love, and a lifelong sense of security.  We can help more children find homes by alleviating all financial barriers to families looking to adopt – but we cannot do this without you!  Please participate in Giving Tuesday by making a contribution to the Spence-Chapin Annual Fund